Today was our appointment with the pediatric otolaryngologist (ENT) and things did not go as I had planned. I envisioned an easy breezy appointment, a peek down her throat and a reassurance that “No, she doesn’t have tracheomalacia, we don’t have to see you again, have a great day!”
Instead, I got an hour and 45 minute wait to see the physician. Thank goodness Sidney is breastfed because I would have never remembered to bring formula. We finally saw the doctor and he was a nice, young, smart physcian. We talked about her history and he checked out her X-ray from Hasbro, listened to her breath (no wheezing today) and started off the discussion with “I don’t want to scare you, but…”
Bottom line is she may have a subglottic hemangioma.
“Subglottic hemangiomas are abnormal growths of blood vessels in the subglottic part of the airway, below the vocal cords. Often, they require no treatment but when they cause narrowing of the airway and breathing difficulty, a physician specializing in airway problems should be contacted. Subglottic hemangiomas often cause a narrowing of the airway in the subglottic area (below the vocal cords) as they grow. When this happens, airway reconstruction surgery may be needed.”
She already has narrowing of the airway according to her X-ray from the beginning of the month, the question is does she have it while healthy? If she does, they will need to put her under and scope her to find out what is causing the narrowing. If she doesn’t, we will have to keep monitoring her closely because babies this young should not get the croup/wheezing she has had multiple times.
I wish I wasn’t so damn curious, because while I ate my dinner tonight I consulted Dr. Google. NEVER. A. GOOD. IDEA. This is the part that made me want to vomit:
“Observation usually suffices for small lesions, which do not cause significant airway obstruction. Tracheotomy is typically necessary to secure the airway until the lesion spontaneously regresses, usually by age 5 years.” emedicine.medscape.com
Another interesting twist to this story is I had a hemangioma on my nose when I was little, that grew pretty big but finally went away- when I was about 5 years old.
Puke. I’m going to keep my faith though that she will be just fine. I don’t want to worry unless I have something to really worry about. Now we will just pray the X-ray shows no narrowing of her airway and the previous hospital incidents were some type of fluke. If you could keep my little Sidney Girl in your prayers, our family would really appreciate it! Thanks! XO