Failure to Thrive Followup

Our Failure to Thrive follow up appointment at Hasbro Children’s Hospital is tomorrow. I have to be honest, I’m nervous. I don’t think he has gained any weight and of course he chooses today to not eat anything except for a slice of grapefruit and half a cheese stick.

Part of me wants to do the Cystic Fibrosis sweat test so I’m not constantly thinking about CF. If he does have CF I’d like to get it diagnosed and get him on the proper meds and hopefully stimulate his appetite. Hopefully  he doesn’t have it,  and I hope we can figure out a solution for the complete lack of appetite. I’ve been giving him two Pediasures a day but that gets expensive and I don’t think it is the healthiest option, but I don’t know how to get enough calories in him!

Sorry this is a rambling post but I have a lot on my mind these days. I hope we can get some answers soon about my little Peanut…

 

Comments

  1. I’ll say a special prayer for you! I would test since you’ve been so worried about it! It will give you peace of mind if it’s negative and a plan if it is positive. Let me know how it goes ASAP!!! XOXOXOXOXOXOXOXOXOX

  2. Joanna, I know it’s hard not to worry, but I truly think Jackson is just fine. So many toddlers are picky eaters and don’t have huge appetites. My nephew is the same way and has been since he was a baby. And my other nephew never made it past the 5th percentile and he’s 3 now and is fine and is just a smaller kid. Some kids are just smaller on the percentile scale (and.. those scales are totally off, in my opinion anyway). I wouldn’t worry, mama! I’m sure Jackson is perfectly OK. Does he show any other signs of CF? I hope everything goes well for you tomorrow. I’ll be thinking of you!!

    • Thanks Jen, no other signs of CF but all the doctors keep telling me that it can present with only low weight gain and no other symptoms– that’s the scary part! Thanks so much for the kind words, it’s so hard not to worry as a Mom! :)

      • I know it’s hard not to worry. Pretty much comes with the territory of parenthood, right? You’re doing all the right stuff. Hoping all his tests cone back just fine. If u need anything at all, I’m here!!

  3. I’m looking forward to reading a positive report after your appointment tomorrow! The worrying is a crappy part of mommyhood.

  4. Aunt Suz says:

    Thinking of all of you. We’ll be waiting to hear about the information you’re given. Just keep in mind that my company has super safe, effective options even for little guys.

  5. Oh, Joanna. I wish I could take all your worries away these days. You have a lot on your plate right now. I hope you get good news today at the doctors. I can understand why you would want to know about CF. It sounds really scary. Please call me if you need anything. I am off this weekend and can be there for you if you need it. Big hug! Love you!
    K

  6. Im here for you doll. Praying all the way. You know I love you and peanut xo